Sunday, February 3, 2008

Not Again!

I took Luke to see the eye specialist on Friday afternoon. This was his 12 week follow-up from the November surgery. His vision is excellent but the eye lid still looks "droopy". The surgeon is fantastic, we are so impressed with his skills and his knowledge. However, he delivered some news today that I absolutely did not want to hear. He feels that the surgery was not effective. The eye still looks droopy because it still turns down slightly. He said he was "baffled."
I worked in health care in my previous life and I know that you don't want to be "baffling" or "interesting". That's doctor speak for "not quite sure what's going on here". The doctor did 3 times the normal amount of surgery on one particular muscle. If anything, you would expect that the eye was over-corrected. Unfortunately, the eye only experienced 3 or 4 degrees of elevation. We were hoping for closer to 10.
I was totally shocked because I thought the results were more positive. I knew the eye still turned down a little bit, but had no idea the change was so minimal. He referred me to a well-respected pediatric eye specialist in Seattle. He wants to hear that doctor's opinion before we even consider operating again. If that doctor doesn't know what to do, then Dr. L says we should consider going to UCLA for an appointment with one of the more knowledgeable specialists in the country.
I held it together until I got the boys in the car, then called Steve right away. He was terrified, I'm sure, because I was crying. Nothing like an emotional woman to make the situation seem worse than it is. Steve actually called Dr. L. right away to see if he could get any more information. I didn't even know what to ask. We didn't really gain any new insights, just that Luke's depth perception is at stake if we don't figure out what's going on.
We were so upset. I know it could be so much worse, but it is still so frustrating and a little scary when things are uncertain. I'm especially grateful that glasses aren't necessary right now. That would really be a bummer.

2 comments:

The Egel Nest said...

You are the recipient of an Egel Nest Blog award for blog eggsellence.

Come by and pick it up!

Congratulations!

Bradley
The Egel Nest

Bradley's Mom said...

Congrats on your Egel Nest Award!

I can see that it is well deserved.......you have a wonderful blog!

I will keep you in my prayers.....that hopefully you will have better news from the doctor soon!!

Linda